Meet Avril
Avril met the Tomorrow Fund Clinic team soon after moving to Rhode Island from the Dominican Republic. She was six and experiencing a sickle cell pain crisis. Diagnosed with the disease at just nine months, her mother, Maria, came here for “a better life and better medical care.”
As part of her care in the months that followed, an MRI revealed Avril had experienced silent mini strokes (TIAs), leading to a diagnosis of moyamoya syndrome. Seen in less than 10% of people with sickle cell disease, the condition is a narrowing of brain arteries that limits blood flow. The recommended treatment was an immediate blood transfusion.
During her May 2023 hospitalization and transfusion, Avril suffered a stroke and several more TIAs. Thankfully, doctors acted quickly, intubating her so her body could heal. When Avril woke two days later, speaking was difficult and she had left hand weakness.
Today, after nearly three years of monthly transfusions to remove the sickled cells from her blood, months of physical and occupational therapy, and countless appointments, Avril, is a resilient nine-year-old managing her medical conditions.
“She’s my warrior. Every day she smiles, despite all she goes through,” says her mom. “I don’t know what would have happened without her Hasbro Children’s care team.”